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#Autism – #Halloween, #GuyFawkes and the problems they bring!

Published November 22, 2013 by mandzmagee

Oh the issues in our house around this time of the year!!

Theo doesn’t like dressing up, doesn’t like the door being knocked on making the dog’s bark, doesn’t like seeing other people dressed up so that he doesn’t know who they are so Halloween certainly is a challenging time for the poor little soul.  It’s even worse when less than a week later we celebrate Guy Fawkes and his escapades by lighting fireworks that light up the sky and make noises when it’s supposed to be Theo’s down time.

I’m absolutely at my wick’s end around bonfire night (Guy Fawkes) because Theo’s anxiety levels are so high they’re lunar and he’s absolutely terrified.  The only way he can settle is by going to bed listening to the radio on his ear defenders and closing his eyes so tightly it’s uncomfortable to settle.  The sensory overload of visual and audible unpredictability for hours and hours of the night makes him so scared within his own safe space.

The curtain’s have to be closed that he can’t see any little piece of window pane, he has to be under a blanket incase he needs to hide his face if there’s too many flashes at once, his ear defenders have to play the radio … just incase they don’t block out all the noise!  I can’t be too far away from him, infact he almost insists on constant body contact with me, this year he cried every and I mean EVERY time Dad left the house.  Unfortunately when he’s had an upset like this it can take weeks … And I mean weeks … All this began 5th November and he’s still having troubles from the night …  He still doesn’t feel safe in his home 😦

It’s absolutely heart wrenching to watch him so upset knowing that there’s absolutely nothing that we’re able to do to make it all better.  I genuinely wish that organised events away from our house were all that was available to the people celebrating and that they were as far away from Theo’s safe space so that he was oblivious to what was going on.

Here’s a little look at him trying to get settled for the night …

https://www.dropbox.com/sc/qs7vfvaii6w8lxj/0HqCQ-vp5h

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#AutismAwareness – A Very Inspiring Find

Published November 8, 2013 by mandzmagee

Having a scroll down my Facebook friend updates I found myself absolutely inspired by a post that a fantastic UK based Autism Awareness group shared.  Personally I think the author is brilliant in wording her Autism life experience into a comparison that anyone would be able to understand wholeheartedly! I simply had to share with you’s all!! If you’re on Facebook like the group … Their posts are always inspiring!!  Links given at the bottom of the post.

The post went as follows …

Before You Complain

Before you complain about your child waking up too early….
Imagine if your child didn’t sleep at all because their brain and body couldn’t connect correctly…or if they woke up for 3 hours in the middle of the night just because

Before you complain that your child is ignoring you or not listening…
Imagine if your child didn’t acknowledge your presence, didn’t even realize you were there, didn’t respond to their own name or even a loud BANG

Before you complain that your child constantly wants you to play and won’t play by themselves…
Imagine if your child NEVER wanted to play with you or freaked out if you attempted to play with them

Before you complain that your child won’t stop talking….
Imagine if your child couldn’t talk or if your 3+ year old couldn’t even call you mama

Before you complain that your child’s insurance has a deductible or high copay…
Imagine if your child’s insurance had a high deductible and high copays…AND doesn’t even cover what your child needs, even after paying the deductibles and copays

Before you complain about your child throwing a tantrum because they can’t get their way….
Imagine if that tantrum was so extreme that the child was screaming(like they were being tortured) for hours, punching the walls, hitting themselves or you, banging their head on the floor, etc….and even if you give them what they wanted, they are so deep in that meltdown, that it doesn’t help. Or worse, if there’s no apparent reason for the meltdown.

Before you complain that your child had a potty accident….
Imagine if your 10+ year old was still in diapers (that you have to change) because their body doesn’t work right or their body is so undersensitive that they can’t feel when they have to go.

Before you complain that the schools don’t give your child all they need….
Imagine if your child needed special schooling and 20+ hours of therapy per week and wasn’t able to get any of it

Before you complain that your child won’t eat their peas…
Imagine if there were only 4 specific foods that your child would eat(not necessarily because they’re picky) and nothing else.

Before you complain that your child is whining….
Imagine if you couldn’t understand what they were whining about.

Before you complain that your child is too emotional….
Imagine if your child didn’t show any emotion…not even happiness

Before you complain that your child is always catching colds….
Imagine if your child has been to the ER so many times you can even guesstimate how many…you’re on a first name basis with the nurses…you have no clue how many times you’ve answered the exact same questions, sometimes to the same person

Before you complain that you don’t get enough alone time or enough breaks…..
Imagine all of the above….and even less alone time and less breaks because there are only a couple people that can handle your child or know enough about your child to make you feel confident leaving them

Before you complain….
Imagine what other some parents deal with on a daily basis…and never complain or ask for anything for themselves. All they do is pray that their child will get the help they need…and that others might be a little more sensitive.

Wrote by Nikki Hazzard Bumgardner

Links – Will open in another page (if it behaves!)

Autism Storms and Rainbows UK – http://www.facebook.com/pages/Autism-Storms-and-Rainbows/152663228214371

Direct link to the post – http://www.facebook.com/permalink.php?story_fbid=260237034123656&id=152663228214371

In Celebration of #AutismParents and #AutismCarers

Published December 22, 2012 by mandzmagee

A little something I found via a group on Facebook I simply had to share!

http://www.facebook.com/pages/Autism-Spectrum-Disorder-through-my-eyes/159306720822434

In Honor Of Autism Parents ♥

Congratulations! You’ve been awarded a new title. You’re super qualified. I know, you’re just a parent. You’re not an SLP, an OT, a PT, or an MD, a Psych or a BCBA.

You’re the person who got up at 4 am because your child only needed 3 hours of sleep last night.

You smiled as you watched him play out his favorite movie script, word for word.

You felt despair as you did everything in your power to convince him to put down his Game Boy and get ready for school.

You revelled in his endless delight with the soap bubbles when he washed his face.

You thought you were going to tear out your hair as you reminded him 40 times to put on his shirt.

You happily made his regular breakfast and cut his waffles into perfect squares with one dot of syrup in the middle, just the way he likes it.

You rejoiced when you watched him and his brother playing and laughing together.

You felt like you were on the verge of insanity when you listened yet again to the baseball statistics and answered the same question 23 times in a row.

You laughed heartily when he told you the weather was going to be poor and he was excited to see lots of Nimbostratus clouds and very few cirrus clouds.

You felt frustration and admiration when you asked him where his lunch bag was and he replied by naming 30 carnivorous dinosaurs, in size order and explained which period they lived in.

You felt pride when you watched him independently organize his school bag and gather his belongings.

You patiently waited 8 minutes for him to tie his shoelaces even though you grew increasingly anxious about the time passing by.

Your heart sang when he looked up at you as he was done, so proud of himself that he had done it alone.

Your eyes brimmed with tears when just before he stepped on the school bus, he turned back and without a word and without any eye contact, he gave you a big hug, letting you know in his own special way how much he loves and appreciates you for everything that you do.

This is the profile of an Absolutely Exceptional Parent. (AEP) So from now when you sign your name, make sure to include your new title…AEP.

– By Jene Aviram, AEP 🙂

This article is property of and copyright © 2003-2007 Jene Aviram of Natural Learning Concepts. http://www.nlconcepts.com/

Celebrities Matter!! Part 2

Published September 21, 2012 by mandzmagee

I’m over the moon that on the same day as I posted my blog about how celebrities in the public eye openly discriminating against others can have an adverse effect, Russell Brand has a program on BBC1 “Russell Brand:  From Addiction to Recovery”, highlighting my exact points amongst many other of his own.

The program has been interesting to watch and it’s so nice to see Russell speaking his mind to the people who are supposed to be helping the users on their road to recovery instead of letting them discriminate infront him.  Many others wouldn’t have the courage to have shared their views as confidently as him.

As I said in the previous blog – the cycles have to be broken – they’re passed along generation to generation, preconceptions from old to young.  Look into the addicts lives – see what took them to that path in their life and see if there’s any way that you can make a difference in the underlying issues.

I give my admiration to Russell for actually proving that people in the public eye will go out and do their bit to awareness raise, try to break the cycles.  Show the many sides of the story!!

Even if the program just opens one persons eyes to the seriousness of the issues of the program – it’s made a difference in one person!!  There may be one person that’s watched the show that’s decided that they’ve been inspired and empowered to make the change to try and battle their addiction – that’s one persons life saved!!  Try and catch the show on BBCi player to see what I mean.

Celebrity highlighting has proven to have worked!!  I’ve been inspired!!

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