Oh the issues in our house around this time of the year!!
Theo doesn’t like dressing up, doesn’t like the door being knocked on making the dog’s bark, doesn’t like seeing other people dressed up so that he doesn’t know who they are so Halloween certainly is a challenging time for the poor little soul. It’s even worse when less than a week later we celebrate Guy Fawkes and his escapades by lighting fireworks that light up the sky and make noises when it’s supposed to be Theo’s down time.
I’m absolutely at my wick’s end around bonfire night (Guy Fawkes) because Theo’s anxiety levels are so high they’re lunar and he’s absolutely terrified. The only way he can settle is by going to bed listening to the radio on his ear defenders and closing his eyes so tightly it’s uncomfortable to settle. The sensory overload of visual and audible unpredictability for hours and hours of the night makes him so scared within his own safe space.
The curtain’s have to be closed that he can’t see any little piece of window pane, he has to be under a blanket incase he needs to hide his face if there’s too many flashes at once, his ear defenders have to play the radio … just incase they don’t block out all the noise! I can’t be too far away from him, infact he almost insists on constant body contact with me, this year he cried every and I mean EVERYtime Dad left the house. Unfortunately when he’s had an upset like this it can take weeks … And I mean weeks … All this began 5th November and he’s still having troubles from the night … He still doesn’t feel safe in his home 😦
It’s absolutely heart wrenching to watch him so upset knowing that there’s absolutely nothing that we’re able to do to make it all better. I genuinely wish that organised events away from our house were all that was available to the people celebrating and that they were as far away from Theo’s safe space so that he was oblivious to what was going on.
Here’s a little look at him trying to get settled for the night …
I have to say the feedback that I’ve received has been amazing from the couple of blogs that I’ve done so far on Autism. It’s really surprised me the fact that so many people have been retweeting my blog and giving me such great comments back!!
Over the past few days I’ve found that there is still far too many parents and carers that have ASD as part of their daily lives still feeling as if they’ve isolated and alone, not knowing which way to turn for support and advice no matter if it’s pre or post diagnosis.
Tonight there was one thing that I realised after speaking to a number of folk – On the off chance that they happen to fall across my blog – I may be able to make a difference!!
One of the best places to turn to for to get this support and information is at your fingertips right now! There are many fantastic online communities, dedicated sites, users of social communication sites that are here to help, advise and most of all support you. The best thing about it is – you can sit comfortably at home after a really stressful day and not worry about people seeing you!
To the people who are already regular readers of my blog and ASD connected – If you’d like to share anything please feel free, let me know if you don’t mind me reblogging your posts or sharing a community you’re involved with – at the end of the day, as you’ll know your self we’re forever picking up useful bits and bobs that are worth while trying just through speaking to other parents and carers.
If you happen to have just stumbled across my blog and have experiences to share, sites or online communities or information pages please do post up and get involved. I’d love people to be posting up more to share with people who are new and unsure of ASD.
Now for the folks that really matter, if you’re new to ASD, unsure of where to go and what to do, needing to ask questions about anything – REMEMBER there’s no such thing as a silly question! If you’re just needing to share your experience and seek advice or hints and tips to try – You’re more than welcome to post up on here and I’ll do my best to get you an answer.